Some days are noisy and some days are just whispers that you could hardly decipher what is being told. Have been away from writing as I just put my thoughts in my e-mail and let things pile up there. Many times, it is the best so people will not misconstrue.
Going two weeks now, we started B6 and Mg on AX and somehow, we are starting to see some differences or changes in his behavior. We give him 100 mg of B6 and 250 mg of Mg per day. He is much, much calmer and has less of the mannerism he does on his hands/fingers all the time. He rarely does his "antics" of doing whatever things over and over and over again. A good example of this is open and close the book several times that you would be affected as he does not stop. He stopped things @ his own pace and when we intervened, it means protest on his part. Since last, last week, he does not pluck his eyebrows and eyelashes so these hairs are growing back again. The changes we see in him make us happy and calm.
He is still not yet a communicator that you would expect for a boy of his age. We keep on hoping though and that is what matters. We do not medicate him and this is the least of the things we have on our minds in order to help him.
AX is almost 12.5 years of age and his body and voice had changed. He is taller @ 5 feet and 1 inch and thinner compared to years before of being chubby. He has undergone puberty faster than I anticipated it. I think, I started noticing body changes when he turned 11 years old. It is still young age to enter puberty though I know adolescence period is around the corner.
He likes Caucasian girls or shall I say, he prefers them. He likes Katy Perry, Pink, Lady Gaga and some of the songs of Adele. He listens to Get Lucky by Daft Punk and Wrecking Ball of a young performer.
He likes going to coolmath website and keeps on typing on google.com for words he does not know or for things or words he likes to search or know more about. He uses the images section of google.com to help him understand something. He plays Minecraft together with his brother, sister and father. This is his current top favorite thing to do. Hence, he keeps asking for the tablet.
He eats more fruits like strawberry, banana, apple, grape, orange, melon, watermelon, blueberry and mango. I give him and his brother their morning fruits on the plate before they eat their rice, hotdog and egg. The egg is usually mixed with mixed vegetables or potatoes or tomatoes and onion. He gets less to nothing of sugary foods and I make sure, he does not indulge. I would rather throw the ice cream than have him consume it all. The kids' viand usually have vegetables even though the second boy complains a bit. AX eats the vegetables with zest.
We have volunteered him to be part of a research study @ Albert Einstein Medical Center in Bronx. It started last 12/2013 and this 2/2014, we will go back there again.
As usual, we are still sparring with the school in terms of placement. The school wants to put him in MD and remove him from his present LLD. I do not think, problems with school will ever be gone and remember the people here should know better but they want to segregate students with disabilities from the general population. You can not tell me differently as this is the 3rd state we have lived in and we have the same problems or issues with the schools. I will relate more on this in another post.
Tuesday, January 28, 2014
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment